Sunday, June 22, 2008

Well...we just keep riding that roller coaster...

Well...we just keep riding that roller coaster. The girls are doing pretty good. They could be doing better but we are working at their pace, not ours. : )

Emma's rate got lowered on her jet this morning from 33 to 28. I cried from joy because it was supposed to go from 33 to 32 and they went all the way down to 28. So the lift in my spirit was nice. Then we got a call from the resident this afternoon saying she didn't tolerate it (according to her blood gases) and they put it back up to 34 (which was higher than the 33). and on down were my spirits. It felt like a big step backwards. Frustrating! But that is how this works. This is the territory. Emotionally exhausting.

Everything else for Emma is good - eating, pooping, growing, etc. She has lost a little weight because of the diuretics. But that is good weight loss. Nothing to worry about. She did get to wear clothes for the first time on her 29th day of life. : ) That's fun! Clovis, I mean Emma, still doesn't like to be touched. She lets you know.

Olivia is doing well. She had her first bottle 2 days ago. She took 4 of the 25 ccs. Not bad for the first time. Mike fed her yesterday and she took 6. She will continue to try for one a day until she eats half of the bottle, then they will start 2 a day. Other than that, she is doing well. They moved her oxygen down to 2 liters and she seems to be doing well. Again.....we'll take it.

We are so grateful they are both here with us and living and breathing!!! They are so very beautiful and special to us!!!

Thanks for your prayers - keep them coming!

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