Friday, November 7, 2008

Quick update...

Emma had her eye exam on Thursday. Both eyes are mature finally!!!! Yea!!! One more thing off the check list.
Her urine test came back showing bacteria. They said this is normal with babies wearing diapers but they are going to play on the safe side and treat her with amoxicillin for 7 days.
She has not spit up in 4 days now. Yea!!! This formula is working and we are back to Zantac. Some of you have mentioned if we have thought about getting a nissen. We met with the GI dr. awhile back and discussed the g-tube and the nissen. At this point, as long as the doctors are fine with her progress, we do not want to do the nissen. To solve the reflux for a short time with a long-term result of never being able to vomit or burp...we're just not ready for that. She is still growing and coming down in oxygen. We do know it is an option if it comes to that. Thanks for the info.
Emma is currently down to 1/8th of a liter. We have 1/16th, then 1/32nd and then we are off. We are not pushing her because we do want her to grow and not struggle to breathe. But when she is satting high, we lower it. We are just letting her lead the way.
We are repeating the cookie swallow to see if she is still aspirating liquid. Part of me doesn't want to do this because what we are doing works finally - eating wise. However, her kidneys need more water/liquid if we can so we'll see what the outcome is.
The endocrinologist called 2 days ago and was fine with all of her results. He said the sodium and magnesium and a couple other things are high but he is pretty sure it was because she is on the powder formula. I told him that I just switched it back to liquid the day before. We are going to give her some time and then repeat the blood work. He seems very comfortable with her. Also, the ionized calcium that was high in the hospital is normal now. That is great!! And her thyroid is normal. So we are looking better for sure in this area.
Now we focus on her kidneys and see what we can do here. Her cookie swallow is Monday and her NICU follow-up appointment is Tuesday. She is starting to pick up her weight so that is great!!!
Well, I'm hitting the sack. Definitely tired!!!
Love to all!!!
Bethany

3 comments:

Megan said...

What a great update!
Love yah!

Kelly said...

So good to hear all of this good news!

Gina Beckwith said...

Go, Em and family! What a "big" girl!!!!!