Everyone seems to be doing well here. Some snotty noses but overall good. We went to Emma's pulmonologist last week. We waited for 2 1/2 hours before we were seen but when you've hauled all the kids and waited that long, you just can't leave. Olivia snuck a crayon out of the lobby and took it back and colored (red) all over their office floor. So she probably was paying them back.
Anyway, it was a very good conversation and I feel like we've touched bases and established him as her lung specialist. So next time she is in the hospital with another lung issue, I can have them contact him to come see her and that makes me feel good. This last time around was pretty frustrating in there.
He also said to stop the treatments - they weren't doing any good for the condition she has. That was music to my ears. Trying to hold down a strong girl and get her to breathe that stuff in is trying to accomplish the impossible. Now we will still do the albuteral treatments when she gets sick. But I can handle that. She is holding steady at 16 lbs. He said a lot of her size issues are due to the TTTS. I've, since then, have been researching the long term effects of TTTS. I'm hoping to understand things a litle more.
We have recently done the older girls room. Enjoy the pictures!
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