What a week! Full of updates...
After spending 5 hours at the hospital Monday, we found out that Emma's kidneys are improving enough that they don't want to see us for another year. Usually it is 6 months. Her kidneys are growing. She was also very positive in saying that she did not think that Emma would need growth hormones but that she would grow in her own time and at her own rate. She said most patients like Emma will just take off when they are ready. Very encouraging!
We also had her 18 month checkup and she has gained a pound since November 19th. Looks like we need to continue the formula and rice cereal. She is at 15 lb. 9 oz. Olivia is at 23 lbs.
Emma took 4 steps a week ago with the visiting nurse. I think she will be walking very soon. Won't that be a day!!!!
Alyssa had her plastic surgeon appointment. We are very encouraged to see what he will be doing and seeing the before and after pictures. I know this will be a hard surgery to get through but I know Alyssa will benefit in the long run. We will be needing to do crafts over Christmas to keep her from rough play. : )
Alyssa's ear surgery is Monday, Dec. 14th. He will be putting in another set of ear tubes. This should be minor and she will hopefully be back at school the next day. There is a Christmas party she really wants to go to. So let's keep our fingers crossed.
Emma had some findings in her ear exam and we are now going to be going to a specialist for her Monday morning. We will be seeing if she needs surgery. I don't know much about what is wrong but I will inform you as soon as I understand what the problem is. They also found fluid on Emma's ears so I'm not sure if they are considering ear tubes also...we'll see...
We will also be checking Loren's hearing. Why not? Maybe we should just have myself and Olivia tested too that way the whole family can go to the ENT. : ) There just gets to a point where you have to joke, otherwise you will cry. Yesterday, when we found out that Emma had ear problems too, I felt like I was trying to eat what was on my plate and someone was just loading on more food. Here I am trying to resolve the issues we are dealing with and here is someone else just loading more on. So Mike will be taking Emma on Monday while I am with Alyssa during surgery.
I heard great news today of some old school friends of mine that are pregnant with twin girls...they also had TTTS and just had surgery and their babies survived when there was no chance just like ours. Praise God!!!
Thursday, December 10, 2009
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